As Maternal-Fetal Medicine physicians, we understand that sharing stories and information about your condition can be therapeutic. We offer this list of support organizations as a resource for you and your family.
An online support group for people who have ended wanted pregnancies for medical reasons.
Fetal Hope Foundation
The Fetal Health Foundation is a nonprofit organization dedicated to hope for expectant parents who’ve received a fetal syndrome diagnosis.
Hope for Two . . Pregnant with Cancer
Hope for Two...The Pregnant with Cancer Network offers free support for women diagnosed with cancer while pregnant. The organization connects women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.
National Accreta Foundation
The mission of the National Accreta Foundation is to eliminate preventable maternal mortality and severe maternal morbidity attributable to placenta accreta. The focus of NAF is to increase awareness of accreta and cesarean overuse, advocate for moms and babies, and connect patients and providers with resources to help improve quality of care.
Pregnant with Cancer Support Group
The Pregnant with Cancer Support Group is a national organization that aims to offer hope and support to women who are diagnosed with cancer while pregnant.
Kay's Kids Group
Kays' Kids is a parent group consisting of and dedicated to families of children born with Congenital Diaphragmatic Hernias (CDH). Members' babies were either born at Shands Children's Hospital at the University of Florida or transported there shortly after birth. All of these babies were fortunate enough to have been treated by pediatric surgeon Dr. David Kays.
The Preeclampsia Foundation is a US-based patient advocacy organization that provides education and support for those impacted by preeclampsia and other hypertensive disorders of pregnancy. Educational materials vetted by a medical board of experts are available in print, DVD and online. A dynamic forum (message board) provides 24/7 information and support to visitors across the globe.
Save the Mommies
Save the Mommies' mission is to advocate, educate, further research and aid in the prevention of Peripartum Cardiomyopathy; a form of heart failure solely brought on by pregnancy. Awareness is key and saving mommies is their mission!.
The PPROM Foundation
The PPROM Foundation aims to provide resource and support for those who have experienced Preterm Premature Rupture of Membranes (PPROM) in their pregnancy and beyond.
The Shane Foundation
The Shane Foundation was established to raise awareness and support research for the prevention and treatment of contraceptive-and pregnancy-related blood clotting disorders.
Twin to Twin Transfusion Syndrome Foundation
The Twin to Twin Transfusion Syndrome Foundation is dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome.